Tag Archives: scleroderma

Reflections..

27 Dec

100_0886Good name for a boatie blog.

But this isn’t that; it’s just what I do at this time of year – me and millions of others I suspect – reflect on the year that’s passing.

I hate to be negative but 2016 hasn’t been a great year, one way or another.

I lost a brother.

Countless celebrities lives ended – we lost such a lot of talent in 2016, many of whom were great inspirations of mine. I suppose we tend to see them as immortal.

Several of my friend’s husbands have been unwell, some having received that diagnosis we all dread. Another friend has suffered throughout the year with infections that the antibiotics struggled to kill. They eventually manage this and now he has to face surgery for renoval of lumps from his chest. And a very dear friend of mine is sruggling with hairloss – most distressing.

I wish them all well for 2017 and good luck with their treatment

And I received a dodgy diagnosis of my own: something called Scleroderma or Systemic Sclerosis – a rare auto-immune disease – which is incurable and needs careful monitoring and management. At least it’s nothing common! Rare = interesting to the medical profession, so at least I’m getting plenty of attention.

It probably won’t kill me but then again it might.

Then there was the trip to South Africa, which saw me in hospital for three days on intravenous antibiotics to treat a nasty chest infection – picked up on the aeroplane I suspect. Not quite what I had hoped for and competely putting the mockers on the holiday. That said, I haven’t smoked since so some good came out of it.

And on coming home, to add insult to injury, the wheels really fell off…

100_2930

The wheels bloody well fell off my carzy carrying trolley. Bugger. However, I should soon take delivery of a new, improved and generally much butcher version. Pics on next post.

Then, the chimney I’d ordered (partly to cheer me up and partly as a Christmas present for Hobo) didn’t bloody fit…100_2935

Double bugger. My fault of course – being a girl misinterpreted the measuring instructions. Easy mistake-a-to-make-a.

Still, the lovely man I ordered it from will replace it (even thought I’ve used it) with the right size for just a small fee and the cost of postage. It’s a company called Smokie Joe’s up in Derbyshire and they produce some pretty spectacular chimneys and cowls – IMHO. First seen on another boatie blog – thanks Steve.

Will post pics of the correct chimney and cowl, once received and fitted… you’ll be impressed, promise.

2016 has been a funny old year, politics in particular: Brexit. Trump. Corbyn. Strikes.

But my friends, be happy and look to the skies…100_2928

Keep the faith.